Social Media Meets Genetic Research
July 17, 2014 3:30 PM Subscribe
What do you do if your child has a condition that is new to science? After describing the effects of his blog post, he told the crowd that it was inevitable that parents of children with other newly discovered diseases would form proactive communities, much as he, Cristina, and the Wilseys had done. Vandana Shashi believes that such communities represent a new paradigm for conducting medical research. “It’s kind of a shift in the scientific world that we have to recognize—that, in this day of social media, dedicated, educated, and well-informed families have the ability to make a huge impact,” she told me. “Gone are the days when we could just say, ‘We’re a cloistered community of researchers, and we alone know how to do this.’ ”
posted by Michele in California (6 comments total)
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It's a long article about a newly discovered genetic disorder and how social media helped accelerate the diagnosis. I am posting it because of the intersection of medical science and social media.