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65 Red Roses
March 28, 2010 11:42 AM   Subscribe

Eva Markvoort, blogger, documentary subject, and cystic fibrosis activist, has died. The film about Eva, 65 Red Roses, was the subject of a post here in February. Her last blog entry was on Thursday; she died on Saturday morning. RIP.
posted by jokeefe (30 comments total) 8 users marked this as a favorite

 
Her final entry on Live Journal:
i'm at that point now
i'm done with the poetics
asking for help
my sister is helping me write
actually helping me write

the medications have been piling up
they are taking their toll
i am supersaturated with medications
i've been medically missing in action for two days
the docs started taking me off some of them to see how i would manage

and i am not managing
not managing at all

i'm drowning in the medications

i can't breathe

every hour
once an hour

i can't breathe

something has to change
She was an extraordinary, and extraordinarily brave person.
posted by jokeefe at 11:45 AM on March 28, 2010 [3 favorites]


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posted by St. Alia of the Bunnies at 11:52 AM on March 28, 2010


I have no real words except to say her story and the brave way she told it truly touched me. It opened my eyes to what being on transplant wait lists can be like. While hers did not work out sadly I hope her tale inspire everyone to donate. My great condolences to her family.
posted by kanata at 11:52 AM on March 28, 2010


She was a local, so I had been following her story. Terribly sad that she's passed. Mean lifespan these days for people with CF is something like 48 years old, up from 25 about 30 years ago. A different roll of the dice, and she might have given us so much more.

Be at peace, Eva.
posted by ten pounds of inedita at 11:57 AM on March 28, 2010


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posted by lucy.jakobs at 12:16 PM on March 28, 2010


So sad.

I had an online friend, a photographer, a LiveJournaler, and a fan of music, who passed away from CF when he was in his 20s. He had kept his condition a secret from many of those who did not know him in person. Sometimes I wish I had known, but what good would it have done? There are those, like Eva, who fight the fight in public, and there were those like my online friend Mark Robinson, who lived a life seemingly like any other, keeping their fight private.

Not really sure what my point is here. To me, her life and passing reminds me of Mark. CF is such a terrible disease, but it clearly cannot take away one's dignity.

These photos of Eva are pretty and sad.
posted by Sticherbeast at 12:19 PM on March 28, 2010


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posted by Pendragon at 12:21 PM on March 28, 2010




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posted by Donnie VandenBos at 12:34 PM on March 28, 2010


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posted by macfly at 2:36 PM on March 28, 2010


indeed, . I've really been touched by this in a way I hadn't imagined, but know that Eva has touched so many people with her courage and optimism in the face of adversity, and I - like so many people - have been blessed by reading her story. Thoughts go out to her family.

Godspeed, young angel.
posted by rmm at 2:37 PM on March 28, 2010


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posted by Smart Dalek at 3:49 PM on March 28, 2010


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posted by pointless_incessant_barking at 7:08 PM on March 28, 2010


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posted by so_gracefully at 7:43 PM on March 28, 2010


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I don't usually do obit threads; I respect them, but I often feel like I'm just one more person in the flood and it doesn't really matter. That being said, I feel compelled to say something. I'm glad Eva had the opportunity to teach people. What she did made a difference to people, and hopefully changed people for the better.

I work - have worked - in a pulmonary office. It was sort of supposed to be a stop-gap because of a snafu in PhD funding and academia politics. That was in fall 2007. It's 95% adults. I'm upset I had to leave my program, I'm stuck answering phones, and I'm a cynical, cranky 25 year-old, younger than everyone else in the office and the only one who hasn't been divorced at least once.

The adult CF patients - 19-40+ now, 40+ being nearly unbelievable ten years ago - are closer in age to me. They weren't three-pack a day smokers - the just got dealt a shitty hand. They're my age. They're going to college and trying to figure out being 25 and all those normal issues while trying to figure out medication and percussion therapy regimens. Some of them handle it better; they have families that are more 'together', or they're innately stronger. Some of them don't. And that's when it hit me. I actually do care about people.

Admittedly, it took about two years for me to figure this out. But I think having the experience of working with young adults, especially people like her who seem to have tried to live the most they could despite their shitty luck, is why I finally applied to an APRN program last fall. People like her, although not her specifically, broke through my fears and cynicism and made me decide to be a more useful person.
posted by cobaltnine at 7:46 PM on March 28, 2010 [4 favorites]


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posted by feckless at 8:18 PM on March 28, 2010


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posted by LittleMissCranky at 8:27 PM on March 28, 2010


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posted by spinifex23 at 9:57 PM on March 28, 2010


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posted by lapolla at 3:04 AM on March 29, 2010


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posted by alphasunhat at 9:55 AM on March 29, 2010


Truly saddened to hear it, like a punch in the chest.

I registered to be an organ donor in Eva's memory. May she be in Peace.
posted by grapefruitmoon at 1:03 PM on March 29, 2010 [2 favorites]


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posted by hurdy gurdy girl at 6:49 PM on March 29, 2010


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