"The EyeWriter project is an ongoing collaborative research effort to empower people, who are suffering from ALS, with creative technologies." [more inside]
posted by brundlefly on Nov 13, 2009 - 5 comments

Scientists report a breakthrough in stem cell production: Stem cells created from ALS patient and used to make neurons. [Via]
posted by homunculus on Aug 1, 2008 - 39 comments

Slow Death Captured on a Blog. Brian Hill died February 2, 2008 after living with and blogging about his experiences with Amyotrophic Lateral Sclerosis. A similar story, previously. [more inside]
posted by otherwordlyglow on Feb 25, 2008 - 14 comments

3D design artist and Filmmaker, father-to-be and fan of long titles extraordinaire, Transfatty, aka Patrick O'Brien (dir. The Man With The Smallest Penis In Existence And The Electron Microscope Technician Who Loved Him, previously) will debut his new DVD, Everything Will Be Okay, or How I Learned to Trancend Form, Live in the Now and Make Love in my Electric Wheelchair, tomorrow in NYC. The DVD is clips from his forthcoming film, October 5, 1974, his ongoing personal documentary about his journey to the end with ALS.
posted by Ambrosia Voyeur on Aug 12, 2007 - 7 comments

Think you've got a problem? Then discover how you should pick your nose with a fish fork. Some guys really don't get all the luck. Not when they bleed to death from eating blueberries.
posted by Cancergiggles on Dec 7, 2004 - 23 comments