Marissa is an adorable toddler with a rare and terrible medical problem:
West Syndrome, a.k.a. infantile spasms. Her father Mike has been active in the online Special Needs community, chronicling her story for years now at his blog
Marissa's Bunny. Last year, his readers raised almost $30,000 through a ChipIn fundraiser to offset the costs of Marissa's neurosurgery. As a sort of 'thank you', and with the help of matching funds from his employers, Mike
offered to give away and/or raffle 40 iPads to the special needs kids of his blogger friends, to be used as assistive technology devices for many of their non-verbal kids. This follows on the heels of several other
iPad raffles he's held in the past year.
Guess what happened next. The Special Needs Parenting blog community is on the case:
Ellen Seidman (and her commenters),
Rob Rummel-Hudson,
Sarah and Joyce Hely,
Shannon Des Roches Rosa and others are putting together the pieces right now.
(previously on MetaFilter: the unravelings of Kaycee Nicole, JT LeRoy, Kodee Kennings, Alexa DiCarlo, and Amina Arraf)
posted by Asparagirl
on Jul 18, 2011 -
183 comments
Lessons In Fatherhood, From the Dads of YouTube: "Home movies have evolved since the days of Panama hat-wearing patriarchs milling about the backyard, holding a Super 8 or shoulder-mounted camcorder, shouting at the children to "wave to the camera!" (only to have those images disappear into a closet to gather dust for decades). Now, with the help of YouTube, these moments can go from minivan to majorly viral in 30 minutes or less."
[more inside]
posted by ericb
on Jun 20, 2010 -
21 comments
Actor, Playwright, Artist, Comedian, Magician, "Man of A Thousand Voices" (including Mighty Mouse,) "Beloved Herring Maven"
Mr. Ira Stadlen (Stage name: "
Captain" Allen Swift) has
passed away at the age of 87. Throughout his career, Mr. Stadler voiced characters in more than 30,000 television and radio commercials, as well as cartoons such as
Underdog,
Tom and Jerry and
Diver Dan, but some might remember him most as the man who saved
Howdy Doody. His nephew
has posted a remembrance on his blog, which includes a link to a "novelty 45" mp3 recording of Swift's
"Are You Lonesome Tonight."
[more inside]
posted by zarq
on Apr 28, 2010 -
13 comments
"Yes, I have four children. Four children with whom I spend a good part of every day: bathing them, combing their hair, sitting with them while they do their homework, holding them while they weep their tragic tears. But I'm not in love with any of them.
I am in love with my husband."
posted by Brandon Blatcher
on May 27, 2009 -
182 comments
Once Upon a Time - a filmed fairy tale starring baby monkeys lost in frightening trees, a witch, crocodiles, a tiger, a "popotamus" and a lion, and even a "tremendously very bad mammoth." (In French, English subtitles)
posted by madamjujujive
on Nov 16, 2008 -
12 comments
Generations of Hope is a non-profit set up to bring kids out of foster care and into extended families with grandparents. The community of
Hope Meadows was repurposed from housing on a
closed Air Force base in Illinois. (The NYT article erroneously refers to the community by the non-profit's name. No matter. The story is still inspirational.)
[more inside]
posted by yiftach
on Sep 16, 2008 -
5 comments
New Security Blanket, Stat! What do you do if you're a parent and your darling child's favorite toy has been worn down to nothing? Or perhaps you're thinking ahead and want a "backup binky?" You start a
"Lost Lovies" thread, of course. Think of it as a hive mind for real desperate housewives looking for something better than a creative explanation as to why Sprinkles the Cow is suddenly MIA.
posted by Cool Papa Bell
on Apr 14, 2008 -
20 comments
The
antidote to the controlled, indoor world of modern kids might be
Adventure Playgrounds. Messy, chaotic, but counter-intuitively, safer than traditional playgrounds, there are only two in the US:
Listen to
Berkeley's Adventure Playground on NPR, or check out some
flickr shots.
In Europe, where they originated
from the rubble of WWII, and in Japan where they are also popular, the importance of play that involves risks is
better understood. There are
hundreds of
Adventure Playgrounds outside of North America.
posted by serazin
on Aug 18, 2007 -
38 comments