Pieter Hintjens is an author and programmer best known as the founder of the ZeroMQ project. He was recently diagnosed with a rare and aggressive form of cancer. A Protocol for Dying is his latest and final blog post in which he reflects on how to interact with the terminally ill.
Last Men Standing. The stories of eight men who aren't supposed to be here. Diagnosed with HIV in the 1980's, when that was a death sentence, they are now living lives they never expected to have. [more inside]
“Hindus are, on average, richer and more educated than Muslims. But oddly, the child mortality rate for Hindus is much higher. All observable factors say Hindus should fare better, but they don't. Economists refer to this as the Muslim mortality puzzle. In a new study, researchers believe that they may have found a solution to the puzzle. And, surprisingly, the solution lies in a single factor – open defecation.” [more inside]
In 1986, Sandra Clarke was working as a staff nurse at Sacred Heart Medical Center in Eugene, OR when a dying man asked her to sit with him. She agreed but first needed to make her rounds and the man died alone in his room before she was able to return. Troubled, and feeling that she had failed a patient, she resolved to gather volunteers to stay with those who were alone and close to death. Ms. Clarke enlisted her entire hospital for a bedside vigil system to help ensure that patients would not be alone when they died. In 2001, Sacred Heart formalized the program as No One Dies Alone (NODA) and over the last decade, it has spread to hospitals across the US. "Susan Cox Is No Longer Here" offers us a glimpse into the NODA experience in Indianapolis. [more inside]
A Life-Or-Death Situation. "As a bioethicist, Margaret "Peggy" Pabst Battin fought for the right of people to end their own lives. After her husband’s cycling accident, her field of study turned unbearably personal." Via.
291 diseases and injuries + 67 risk factors + 1,160 non-fatal complications = 650 million estimates of how we age, sicken, and die
As humans live longer, what ails us isn't necessarily what kills us: five data visualizations of how we age, sicken, and die. Causes of death by age, sex, region, and year. Heat map of leading causes and risks by region. Changes in leading causes and risks between 1990 and 2010. Healthy years lost to disability vs. life expectancy in 1990 and 2010. Uncertainties of causes and risks. From the team for the massive Institute for Health Metrics and Evaluation Global Burden of Diseases, Injuries, and Risk Factors Study 2010. [more inside]
Remember Me. A multimedia documentary about one family's struggle to deal with the loss of a parent. This series is the 2008 Pulitzer winner for feature photography. [more inside]
This is a friend of a friend. Jon and Heidi Connal traveled around the world from June 2001 to Oct 2002. They included all of their experiences in a journal on their website. Jon Andrew Connal ran a marathon almost every month. Then he got sick and started throwing up blood for no apparent reason. The doctor thought it might be some sort of pneumonia. He was a very healthy man but for no apparent reason he suddenly died 3 days later. It's a sad story about wonderful people.