MetaFilter posts tagged with LouGehrigsDisease

Slow Death Captured on a Blog

otherwordlyglow — Mon, 25 Feb 2008 16:34:22 -0800

Slow Death Captured on a Blog. Brian Hill died February 2, 2008 after living with and blogging about his experiences with Amyotrophic Lateral Sclerosis. A similar story, previously. He was diagnosed with ALS, or amyotrophic lateral sclerosis, on Jan. 13, 2004. Readers of his blog discovered a rare personal account that chronicled one man's eloquent journey through the maelstrom of an incurable and fatal disease.

Proceeds to benefit the Patrick O'Brien Foundation

Ambrosia Voyeur — Sun, 12 Aug 2007 20:24:57 -0800

3D design artist and Filmmaker, father-to-be and fan of long titles extraordinaire, Transfatty, aka Patrick O'Brien (dir. The Man With The Smallest Penis In Existence And The Electron Microscope Technician Who Loved Him, previously) will debut his new DVD, Everything Will Be Okay, or How I Learned to Trancend Form, Live in the Now and Make Love in my Electric Wheelchair, tomorrow in NYC. The DVD is clips from his forthcoming film, October 5, 1974, his ongoing personal documentary about his journey to the end with ALS.

Eddie Adams has died

bonaldi — Sun, 19 Sep 2004 20:47:26 -0800

Eddie Adams has died at 71. Just last week the NPPA sent out a poignant message warning of his looming death from Lou Gehrig's disease. Who is he, you ask? The photographer who took the iconic image of an on-street execution in Vietnam and who set up the Eddie Adams Workshop. Top video here.