Susannah Cahalan has a month-long gap in her memory from when she was struck by the little known disease anti-NMDA receptor encephalitis. Cahalan, a New York Post journalist, wrote an account of her ordeal shortly after it happened, and went on the Today Show to talk about it. Now she has written a book on her experience called Brain on Fire and wants to make people aware of the disease, and that was the subject of a follow-up segment on the Today Show. She is not the only person to have been afflicted. There is more information about the disease and the book on Cahalan's website. She was interviewed at length on NPR's Fresh Air earlier this month. Novelist and essayist Leslie Jamison has a well-written review of Brain on Fire and puts it in its literary context.
Nanoparticles covered in proteins trick immune system. A breakthrough new experimental treatment that uses nanoparticles covered with proteins to trick the immune system, managed to stop it attacking myelin and halt disease progression in mice with relapsing remitting multiple sclerosis (MS). The researchers say the approach may also be applicable to other auto-immune diseases such as asthma and type 1 diabetes.
Venus Williams, learning to live with a chronic illness. [NYTimes.com] "Singing replaced swinging; karaoke became her way to cope. Williams said this Monday, in a quiet moment at the French Open, inside a windowless room beneath the courts. Since doctors told her she had Sjögren’s syndrome, an incurable autoimmune disease, last year at the United States Open, everything has changed. Williams says she wakes up each morning unsure of how she will feel."
A quiet revolution is taking place in the multiple sclerosis community. Long thought of as purely an autoimmune disease, possibly secondary to Epstein-Barr virus infection or even an STI, MS has never been pinned down to a single cause. Now things are changing, in a big and bloody way: MS appears to be related to abnormalities in veins. [more inside]