The Toronto Star has recently published a three-part story (1
) on the life and death of toddler Stella Joy, who was diagnosed with diffuse intrinsic pontine glioma
) at age 2. As this disease is considered 100% fatal, Stella's mothers (link to blog)
chose not to have Stella undergo radiation treatment in order to preserve as much quality of life as possible. The love of Stella's family and community as they support her and each other through her death is truly inspiring. [more inside]
posted by fiercecupcake
on Dec 17, 2012 -
This youtube video explains VENGEANCE
- The Story of Curmudgeon's Revenge
: Members of a forum for Jeep JK Wrangler owners came together for one of their own in a quite extraordinary way. When it became clear that one of their original members was losing his battle with cancer several members flew from all around the country to his house, bought his jeep, drove it across the country, and then spent almost a year converting it from a Jeep
into something they call VENGEANCE
, "A Badass 2-Door Jeep JK Wrangler Worthy of its Name". Now they're auctioning it
to raise money so his daughter can go to college.
posted by Blake
on Dec 12, 2012 -
So was it worth it?
Well of course not. It turns out it was just advertising. There was no higher calling. No ultimate prize. Just a lot of faded, yellowing newsprint, and old video cassettes in an obsolete format I can’t even play any more even if I was interested. Oh yes, and a lot of framed certificates and little gold statuettes. A shit-load of empty Prozac boxes, wine bottles, a lot of grey hair and a tumor of indeterminate dimensions. [more inside]
posted by 2bucksplus
on Nov 9, 2012 -
Comedian Tig Notaro
has had extreme highs and extreme lows. She is moving to New York to work on Amy Schumer’s new television show, and she was recently on This American Life. But then she had a debilitating bacterial infection in her digestive tract for which she was hospitalized. Days after being released from the hospital, her young mother died suddenly and tragically, then she and her girlfriend broke up. Now she has cancer, in both breasts. Last Friday, Tig performed a stand-up set at LA's Largo at the Coronet
where she talked all of this. Everyone laughed and wept. Louis CK said, "In 27 years doing this, I've seen a handful of truly great, masterful standup sets. One was Tig Notaro last night at Largo."
posted by alzi
on Aug 6, 2012 -
Since she is not truly an emergency patient, she is triaged to the back of the line, and other folks, those in immediate distress, get in for treatment ahead of her. She waits on a gurney in a cavernous green hallway.
The “chief complaint” on her chart at Grady Memorial Hospital, in Downtown Atlanta, might have set off a wave of nausea in a hospital at a white suburb or almost any place in the civilized world. It reads, “My breast has fallen off. Can you reattach it?
” (via Boing Boing
) [more inside]
posted by Joe in Australia
on Apr 24, 2012 -
"As a career patient, I’ve learned one thing at least: the importance of clinging to the rag-end of your sense of self, however you define it—intellect, sense of humor, generosity of spirit, a stoicism worthy of Seneca or Mr. Spock, or, in a writer’s case, the mind that makes sense of itself as a reflection in the mirror of language. In the M.A.S.H.-unit chaos of the E.R.; in the nowhere, notime of the hospital room; in the O.R., where the euphoria of oncoming anesthesia and the doting attentions of apparitions in scrubs make you understand, in an instant, the perverse seductions of Munchausen’s Syndrome as you ride into the stage-light radiance on your gurney like the Son of Heaven in his sedan chair, feeling for all the world like a pathological celebrity—in these moments of inescapable embodiment, I’ve learned to float free in my head, a thought balloon untethered from the body on the sickbed or the operating table."
-A Season in Hell
) Mark Dery
posted by lemuring
on Apr 13, 2012 -
On May 19, 1984, an unemployed ice cream truck driver named Michael Larson went on Press Your Luck
and over the course of two episodes, took home more money than had ever been won in the history of television: $110,237 -- to the shock of the show’s producers and host, the late Peter Tomarken
. How did he do it? The show’s game board had only 5 patterns of 18 squares, and Mr. Larson had memorized them all. After the show, CBS tried to disqualify him but couldn’t, because Larson hadn’t done anything illegal. But they did
refuse to allow those episodes to be aired in syndication. So, they didn’t re-air until 2003, when the Game Show Network produced a Tomarken-hosted documentary about Mr. Larson’s incredible win: Big Bucks: The Press Your Luck Scandal
. [more inside]
posted by zarq
on Apr 3, 2012 -
Young Edd Gould
always enjoyed drawing comics of himself and his friends. Growing up in the internet age, his doodles
evolved into Flash animations of increasing complexity, and in time Edd and pals Tom Ridgewell
and Matt Hargreaves teamed up to produce an "Eddsworld"
series of online webtoons and comics
At first crude and halting, the group's "eddisodes"
progressed from surreal shorts
into full-fledged productions that pushed the boundaries of amateur web animation, with expressive characters
, full soundtracks
, complex effects, and a fast-paced, off-kilter sense of humor: MovieMakers
- Rock Bottom
- Hammer & Fail
At its height, the college co-op was producing shorts for Mitchell & Webb
and the UN Climate Change Conference
, fielding offers
from Paramount and Cartoon Network, and racking up millions of hits on YouTube
Work slowed, however, when Gould was diagnosed with leukemia
-- a relatively survivable form, though, and Gould carried on working gamely
through his hospital stays. So it came as a shock last week when Matt and Tom announced that Edd had passed away
, prompting an outpouring
in his short 23 years.
posted by Rhaomi
on Apr 2, 2012 -
NPR is reporting that the Susan G. Komen foundation is severing it's ties and halting grants
to Planned Parenthood, cutting off "hundreds of thousands of dollars", mainly earmarked for breast exams.
Komen says the key reason is that Planned Parenthood is under investigation in Congress — a probe launched by a conservative Republican who was urged to act by anti-abortion groups. [more inside]
posted by roomthreeseventeen
on Jan 31, 2012 -
I live online as much as I live offline. Often, I move around in the world staring into a device as I walk, sharing bits of one realm with the other. The morning I went in for my first mammogram, I felt nervous. I would tweet this new thing, like I do with lots of new things, and make the unknown and new feel less so. Maybe by doing so, I thought while I was driving, other women like me who'd never done this would also feel like it was less weird, less scary, more normal and worth doing without hesitation. I'd crack some 140-character jokes. I'd make fun of myself and others. I would Instagram my mammogram.
posted by cgc373
on Dec 10, 2011 -
Trial of the Will.
"Reviewing familiar principles and maxims in the face of mortal illness, Christopher Hitchens has found one of them increasingly ridiculous: 'Whatever doesn’t kill me makes me stronger.' Oh, really? Take the case of the philosopher to whom that line is usually attributed, Friedrich Nietzsche, who lost his mind to what was probably syphilis. Or America’s homegrown philosopher Sidney Hook, who survived a stroke and wished he hadn’t. Or, indeed, the author, viciously weakened by the very medicine that is keeping him alive." [Via]
posted by homunculus
on Dec 8, 2011 -