5 posts tagged with cysticfibrosis.
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"It feels like I'm breathing through a straw"

OneRepublic just released their latest music video, I Lived, which tells the story of Bryan Warnecke. He's a fifteen year old boy who cycled over a thousand miles in 43 days over 8 mountain passes, raising $260,000 for Cystic Fibrosis research. He also suffers from Cystic Fibrosis. [more inside]
posted by Stark on Sep 26, 2014 - 2 comments

Supermasochist Bob Flanagan

Bob was sick He didn't take it the way you or I might. He got pissed off. And he took it personally. [more inside]
posted by Splunge on Mar 10, 2011 - 9 comments

65 RedRoses

65_RedRoses is Eva Markvoort’s online handle—chosen because red is her favourite colour, and because when she was little, 65 Roses was how she said Cystic Fibrosis, the genetic disease she’s battled her whole life. Her wait for a double lung transplant, and her online friendship with two other young women battling CF are documented in the award-winning film 65_RedRoses.

After receiving her lung transplant two years, Eva has since had to battle with chronic rejection. Eva made an video on Feb 11th, announcing that things have taken a turn for the worse. As friends and family wait with her, every extra day becomes a gift and brings new hope.
posted by stray on Feb 21, 2010 - 14 comments

Laura Rothenberg

Last August, Metafilter readers learned of the story of Laura Rothenberg, a student at Brown University who chronicled her battle with cystic fibrosis on NPR's Radio Diaries. Sadly, Laura died last week at age 22. NPR remembers her here and a moving tribute aired earlier this week on All Things Considered.
posted by PrinceValium on Mar 27, 2003 - 13 comments

Jay Mohr sells Pete Rose's chewed gum on eBay.

Jay Mohr sells Pete Rose's chewed gum on eBay. There's no satire like self-satire, is there? ESPN talk-show host Jay Mohr had Pete Rose chew a piece on air, took it from him ("I have to touch it so I can tell the story," he said (more or less)), put it in a beaker that Rose then signed, and is now selling it on eBay to raise money for the Cystic Fibrosis Foundation. It's currently at -- no kidding -- US $1,050.00.
posted by mattpfeff on Apr 9, 2002 - 11 comments

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