Marissa is an adorable toddler with a rare and terrible medical problem:
West Syndrome, a.k.a. infantile spasms. Her father Mike has been active in the online Special Needs community, chronicling her story for years now at his blog
Marissa's Bunny. Last year, his readers raised almost $30,000 through a ChipIn fundraiser to offset the costs of Marissa's neurosurgery. As a sort of 'thank you', and with the help of matching funds from his employers, Mike
offered to give away and/or raffle 40 iPads to the special needs kids of his blogger friends, to be used as assistive technology devices for many of their non-verbal kids. This follows on the heels of several other
iPad raffles he's held in the past year.
Guess what happened next. The Special Needs Parenting blog community is on the case:
Ellen Seidman (and her commenters),
Rob Rummel-Hudson,
Sarah and Joyce Hely,
Shannon Des Roches Rosa and others are putting together the pieces right now.
(previously on MetaFilter: the unravelings of Kaycee Nicole, JT LeRoy, Kodee Kennings, Alexa DiCarlo, and Amina Arraf)
posted by Asparagirl
on Jul 18, 2011 -
183 comments
Philosophy fundraiser mountain walk-a-thon. Prominent philosophy professor Crispin Wright will walk the length of the
Pennine Way, a 250+ mile mountaintop trail in the UK, to raise funds to support his philosophy students. (The link on the Pennine Way is worth reading.) Along the way he'll stop each day to answer a philosophical question voted on by the people who contribute to the fund.
posted by LobsterMitten
on Jun 25, 2011 -
17 comments
How far should the commercialisation of fine art go? The British Museum has licensed an on-line company
atelier 350 to sell reproductions of some of the drawings in their collection. This article argues that the sales description is misleading and if replicated on a wider scale could harm the general public's perception of access to the collections in the long run. I agree that museums have to raise funds somehow and I'm not against the selling of some of the more popular images, however, surely their first responsibility must be to educate not to distort or hide the truth in the way which is shown here.
posted by feelinglistless
on Jun 6, 2002 -
9 comments
What would you pay for this stuff? CBS/Survivor auctions off gee-gaws from Survivor Africa to benefit Elizabeth Glaser Pediatric AIDS foundation. Way to go Survivor! As much as you may not like this show, it's a pretty cool thing to do.
Would you pay $25,000 for the Immunity Idol, though?
posted by aacheson
on Jan 11, 2002 -
12 comments
