Brenna’s first birthday is next week. Her mother has been blogging about life with a newborn with a rare genetic skin disorder for a year, too.
Our daughter … was born on December 19 (2011) with a rare genetic skin condition called Harlequin Ichthyosis. Because her skin lacks a protein that allows it to develop correctly, Brenna was born with thick, white scales with deep, red fissures covering her body. (some possibly upsetting images) [more inside]