is an adorable toddler with a rare and terrible medical problem: West Syndrome
, a.k.a. infantile spasms. Her father Mike has been active in the online Special Needs community, chronicling her story for years now at his blog Marissa's Bunny
. Last year, his readers raised almost $30,000 through a ChipIn fundraiser to offset the costs of Marissa's neurosurgery. As a sort of 'thank you', and with the help of matching funds from his employers, Mike offered to give away and/or raffle 40 iPads
to the special needs kids of his blogger friends, to be used as assistive technology devices for many of their non-verbal kids. This follows on the heels of several other iPad raffles
he's held in the past year.
Guess what happened next. The Special Needs Parenting blog community is on the case: Ellen Seidman
(and her commenters), Rob Rummel-Hudson
, Sarah and Joyce Hely
, Shannon Des Roches Rosa
and others are putting together the pieces right now.
(previously on MetaFilter: the unravelings of Kaycee Nicole, JT LeRoy, Kodee Kennings, Alexa DiCarlo, and Amina Arraf)
posted by Asparagirl
on Jul 18, 2011 -