When an NBC producer fell for celebrated surgeon Paolo Macchiarini while filming a Dateline documentary special about him, she thought her biggest problem was a breach of journalistic ethics. Then things got really interesting.
Dr. Henry Marsh has performed 400 "awake craniotomies" -- a surgical procedure he helped pioneer -- in which a specific kind of brain tumor that looks just like the brain itself is identified through electric stimulation and removed. Without surgery, 50 percent of patients die within 5 years; 80 percent within 10 years, and the operation can prolong their lives by 10 to 20 years or more. He was profiled in a 2007 documentary: The English Surgeon as well as this article by Karl Ove Knausgaard: The Terrible Beauty of Brain Surgery. Images in some links in this post may be disturbing to some viewers.
Dr. Peter Rasmussen: retired oncologist, hospice physician and advocate for Oregon's Death with Dignity law, was given a terminal brain cancer diagnosis in Spring 2014. The Oregon Statesman Journal followed Dr. Rasmussen's end-of-life journey in articles, photos and videos, as he grappled with the same issues he once fought for on behalf of his own patients. Harper's Magazine: When I Die. [more inside]
The Lost Girls: 'Misdiagnosed, misunderstood or missed altogether, many women with autism struggle to get the help they need.' Part of Spectrum's Sex/Gender in Autism special report. [more inside]
For most of US history, our relationship with death was more intimate than it is today. Americans often died at home and remained there until burial, where they were washed, wrapped in shrouds, and laid out on boards while the family made preparations for a funeral feast and an at-home funeral. In addition to family, women known as “Layers Out of the Dead,” helped take care of the immediate tasks following a death. This homespun approach to death largely persisted until the Civil War, when embalming, hospitals and eventually funeral directors changed the way we dealt with our deceased. But now, with home funerals and even green burials slowly regaining acceptance, a new generation of “Layers Out of the Dead,” are emerging.
New U.S. government research indicates that female military veterans commit suicide at nearly six times the rate of other women and at rates nearly equal to that of male veterans -- a finding that surprised researchers because women are generally are far less likely than men to commit suicide. The findings raise questions about the backgrounds and experiences of women who serve in the United States' armed forces. [more inside]
Loaded with Lead. America has an estimated 10,000 gun ranges and 40 million annual recreational shooters. But when guns are fired with lead-based ammunition, they spread a toxin: lead vapor and dust. A year-long Seattle Times investigation shows that due to poor ventilation and contact with lead-coated surfaces, thousands of workers, shooters and their family members have been contaminated and been made sick at shooting ranges nationwide. Reckless range owners/operators, unenforced regulations as well as a lack of oversight and inspections are to blame. [more inside]
The Last Day of Her Life. When Cornell psychology professor Sandy Bem found out she had Alzheimer’s, she resolved that before the disease stole her mind, she would kill herself. The question was, when? [more inside]
Since 2006, Alice Proujansky has photographed childbirths around the world for a project entitled 'Birth Culture.' Her intent is to highlight 'the universal aspects of childbirth, elements that are culturally-specific and the struggle to provide women with safe, respectful maternity care.' Images: Photographer's site. NYTimes Gallery. Agnostica. Slate. Some photos may be NSFW.
"Postpartum depression isn’t always postpartum. It isn’t even always depression. A fast-growing body of research is changing the very definition of maternal mental illness, showing that it is more common and varied than previously thought." ‘Thinking of Ways to Harm Her’ and "After Baby, an Unraveling". [more inside]
Post-operative Check: "It's okay that you don't remember me. My name is Shara, and I'm part of the surgical team. I'm checking to see how you're doing after your surgery. Do you know where you are right now?" [more inside]
In 1986, Sandra Clarke was working as a staff nurse at Sacred Heart Medical Center in Eugene, OR when a dying man asked her to sit with him. She agreed but first needed to make her rounds and the man died alone in his room before she was able to return. Troubled, and feeling that she had failed a patient, she resolved to gather volunteers to stay with those who were alone and close to death. Ms. Clarke enlisted her entire hospital for a bedside vigil system to help ensure that patients would not be alone when they died. In 2001, Sacred Heart formalized the program as No One Dies Alone (NODA) and over the last decade, it has spread to hospitals across the US. "Susan Cox Is No Longer Here" offers us a glimpse into the NODA experience in Indianapolis. [more inside]
The Nazi Anatomists. "How the corpses of Hitler's victims are still haunting modern science—and American abortion politics."
In the Shadows. The healthcare and human rights challenges of the LGBT populations of Malawi -- where homosexuality is outlawed. Via
The Course of Their Lives. While much in medicine has changed over the last century, the defining course of a first year medical student's education is still 'Gross Anatomy.' This is their hands-on tour of a donated cadaver -- an actual human body -- and is an experience which cannot be replicated by computer models. When Milwaukee Journal Sentinel reporter Mark Johnson came up with the idea of following a med school gross anatomy class for a feature story, his editor challenged him to make it different. So he chose to intertwine the students' stories with that of Geraldine 'Nana' Fotsch, a living future donor, as sort of a stand-in for the cadaver. (Via. This four-part series contains descriptions of a human dissection. Some may find it disturbing.) [more inside]
More than half the population of small, rural Madras, Oregon (population: ~6059) and its surrounding community is served by one clinic: Madras Medical. At the beginning of 2006, the clinic's doctors and nurses decided to ban pharmaceutical reps from visiting their practice. No more free lunches. No more free drug samples. No more gifts. And yet.... "It's made us better doctors." (Via) [more inside]
A Life-Or-Death Situation. "As a bioethicist, Margaret "Peggy" Pabst Battin fought for the right of people to end their own lives. After her husband’s cycling accident, her field of study turned unbearably personal." Via.
Bitter Pill: Why Medical Bills Are Killing Us. Summary: Inside the Cover Story. Related video: The Exorbitant Prices of Health Care [more inside]
Jennie Linn McCormack "isn’t the only woman in recent years to be prosecuted for ending her own pregnancy. But her case could change the trajectory of abortion law in the United States": The Rise of DIY Abortions. [more inside]
This past August, producer Bryan Singer (The Usual Suspects, X-Men) launched a new digital series: H+. The premise: in the near future, 33% of humanity has retired their smartphones, tablets and computers in favor of an implanted computer system, H+, which connects them directly to the internet 24/7. The story begins as a computer virus attacks the implants, killing billions. In intersecting storylines across four continents (told in part through flashbacks,) the series then unravels what happened, who caused it and why. [more inside]
Global Trends 2030 Alternate Worlds is the latest quadrennial report from The US National Intelligence Council (NIC). (Report: PDF / Talking Points: PDF.) Similar to its predecessors, '2030' attempts to predict 'alternate visions of the future.' An official blog discusses their speculations. The Atlantic Council has published a "companion publication": "Envisioning 2030: US Strategy for a Post-Western World." [more inside]
On November 30, the Tampa Bay Times published a sympathetic profile of Spring Hill, FL resident Gretchen Molannen: "Persistent genital arousal disorder brings woman agony, not ecstasy." Her condition, also known as PGAD, is a rare sexual disorder (not recognized by the DSM,) 'characterized by spontaneous, persistent, unwanted sexual arousal unrelated to feelings of sexual desire.' The Times reported that Ms. Molannen's condition had virtually destroyed her personal and professional life and led to several suicide attempts. One day after the article was published, she successfully committed suicide. [more inside]
You're about to be the base doctor at Halley Research Station in Antarctica for a year. For ten months, no one gets in or out. Fourteen lives are in your hands, including your own. What do you put in your medical kit? And how do your choices differ from those of your predecessors (Eric Marshall and Edward Wilson) a century ago?
20% of Anorexics Are Men. And that number is reportedly rising. "Diagnosis is hard. Finding treatment is even harder. Many residential centers don't admit men, out of a belief that treatment should be sex-specific." Article contains images and descriptions that may be disturbing to those with eating disorders. Single page version here.
"The business of recycling dead humans into medical implants is a little-known yet lucrative trade. But its practices have roused concerns about how tissues are obtained and how well grieving families and transplant patients are informed about the realities and the risks." After an eight month international investigation, the International Consortium of Investigative Journalists has published an extensive four-part exposé into the black market for cadavers and human tissue: Skin and Bone: The Shadowy Trade in Human Body Parts (Via) [more inside]
Earlier this year, six scientists and doctors filed a lawsuit against the US Food and Drug Administration alleging that the FDA had secretly monitored their personal e-mail accounts after they (legally) warned Congress that the "agency was approving medical devices that they believed posed unacceptable risks to patients." The agency said it had done so to "investigate allegations that the employees had leaked confidential information to the public." At the time, the FDA indicated their computer monitoring was limited to five scientists. But now, the New York Times is reporting that "what began as a narrow investigation" "quickly grew in mid-2010 into a much broader campaign to counter outside critics of the agency’s medical review process.". [more inside]
"Experimental adaptation of an influenza H5 HA confers respiratory droplet transmission to a reassortant H5 HA/H1N1 virus in ferrets." After an extensive, months-long debate, one of two controversial papers showing ways the H5N1 "avian" influenza virus could potentially become transmissible in mammals with only 3 or 4 mutations was published in Nature today. The journal included an editorial on the merits and drawbacks of "publishing risky research" with regard to biosafety. The debate included an unprecedented recommendation by The US National Science Advisory Board for Biosecurity (NSABB) to block publication -- a decision they later reversed. (Via: 1, 2) Nature's special report has additional articles, including interviews with the teams behind both papers.
Since 2000, the Centers for Disease Control and Prevention has based its estimates of how many children in the United States have autism on surveillance reports from its Autism and Developmental Disabilities Monitoring Network. Every two years, researchers count how many 8-year-olds have an autism spectrum disorder in about a dozen communities across the nation. According to a new report released by the CDC yesterday, (pdf), the latest data estimate that 1 in 88 American children has some form of autism spectrum disorder. (1 in 54 boys and 1 in 252 girls.) That's a 78% increase compared to a decade ago. The report, which analyzed data from 2008, indicates a 23 percent rise in diagnoses of ASDs over a two-year period. (Last link has autoplaying video)
In March 2010, a pair of health inspectors responding to multiple tips paid a three-day visit to the factory headquarters of the Poly Implant Prothese (PIP) company, a leading international maker of breast implants. On their second day, the inspectors found something odd: six discarded plastic containers of Silopren, a liquid silicone designed for industrial, not medical use, lined up along the outside wall of the production site. The lead inspector estimated they had contained nearly 9 tons of liquid silicone. It now appears as if between 300,000 and 400,000 women throughout the world may have received potentially toxic, faulty breast implants containing ingredients never clinically tested on humans, manufactured and distributed by a company that knowingly deceived regulators, suppliers, distributors, medical professionals and ultimately, patients. Reuters photographer's Blog: Operating on an implant scandal. (Last link NSFW, graphic images that contain nudity.) [more inside]
Qualcomm and the X Prize Foundation have launched a new contest: Envision and build the equivalent of Star Trek's medical tricorder, a portable health monitoring device that can remotely diagnose patients. The winner will receive $10 million. [more inside]
In 2002, Doug Monroe placed his parents in assisted living. A decade later, he's looking back at "the weighty financial and emotional costs that come with a parent's immortality": The Long Goodbye.
How can we better understand the interplay of nature and nurture in determining our personalities, behavior, and vulnerability to disease? Perhaps we should be looking at identical twins. (National Geographic January 2012 cover story) [more inside]
The US Center for Disease Dynamics, Economics and Policy runs a non-profit, Extending the Cure, which conducts policy research to extend antibiotic effectiveness, and ResistanceMap, which generates interactive analysis tools and maps regarding antibiotic use in Europe and the US. The most recent ResistanceMap visualizations indicate that the US Southeast overprescribes antibiotics at a high rate compared with the rest of the country. Science journalist / "Superbug" blogger Maryn McKenna speculates (while acknowledging that correlation ≠ causation,) that the map might also indicate a link between overuse of antibiotics, obesity, diabetes and stroke. [more inside]
"Every day in the U.S., about 500 people lose a limb. About 1,800 amputation surgeries are performed each year in Oklahoma. More than 1,600 of those — about 90 percent — are lower body amputations. So every day in Oklahoma, four people lose part or all of a leg." (Nationally, the most common procedure is toe amputation.) "These are the stories of four people living in Oklahoma — a mother, a senior, a Marine and a student — all living life on at least one prosthetic leg": Standing Tall [more inside]
Since 1988, the Center for Reproductive Rights has compiled a visual map of the laws regulating abortion throughout the world. Earlier this month, they released their 2011 Map in pdf and updated their online World Abortion Laws Map in a new interactive format which allows country comparisons and provides text of abortion laws for certain countries. (Via Good: Can I get an Abortion Here? The Abortion Rights Map of the World)
Jane Pratt (formerly of Sassy Magazine and her eponymous Jane,) launched a website for women: xojane, earlier this year. Last week the site's Health and Beauty Director wrote a blog post explaining that she never uses condoms, birth control pills, or other contraception (for fear of becoming fat) and instead relies on the emergency contraceptive Plan B to prevent pregnancy. And a segment of the internet exploded. (Her responses to some of the comments seem a bit clueless for someone with her title.) Critics have noted that the post was filled with "ignorant" "inaccuracies and misconceptions" about womens' health, sex, Plan B and other forms of birth control. [more inside]
"...we still can’t tell whether we are all about to die or whether we are being sold a bill of goods."
'The stories about epidemics that are told in the American press—their plots and tropes—date to the 1920's, when modern research science, science journalism, and science fiction were born.' This is the story of how the media back then (January, 1930) helped fuel fears about a parrot-fever pandemic, and the subsequent public backlash. (Via) [more inside]
At the beginning of last month, Scientific American unveiled a new network of 47 blogs with 55 bloggers. Their latest posts can be found here. [more inside]
Hesperian is a non-profit publisher of books and newsletters for community-based health care, mostly aimed at the third world. Their first book, Where There Is No Doctor, A Village Health Handbook, has been translated into 88 languages and is one of the most widely used training and work manuals for community health care in the world. They have now made 20 of their publications available for free download, many of which can now also be browsed online through their website using an "Ebrary" in-browser interface. [more inside]
The Summer 2011 issue of Stanford Medicine Magazine is about "Surviving Survival": The Woman Who Fell To Earth / Khmer Rouge on Trial / A Kid Again / Her Stroke of Insight / RxErcise [more inside]
"There are no national standards or regulations regarding forensic pathology and practices vary widely from place to place."
The Hardest Cases: When Children Die, Justice Can Be Elusive A joint investigation by PBS Frontline, ProPublica and NPR has found that medical examiners and coroners have repeatedly mishandled cases of infant and child deaths, helping to put innocent people behind bars. (Via. (Article contains descriptions of children that have been killed by abuse. May be disturbing / triggering to some readers.) [more inside]
The Triumph of New-Age Medicine "Medicine has long decried acupuncture, homeopathy, and the like as dangerous nonsense that preys on the gullible. Again and again, carefully controlled studies have shown alternative medicine to work no better than a placebo. But now many doctors admit that alternative medicine often seems to do a better job of making patients well, and at a much lower cost, than mainstream care—and they’re trying to learn from it." [more inside]
The Burns Archive is a collection of over 700,000 historical photographs that document disturbing subject matter: obsolete medical practices and experiments, death, disease, disasters, crime, revolutions, riots and war. Newsweek posted a select gallery this past October, as well as a video interview and walk-through with curator and collector Dr. Stanley B. Burns, a New York opthalmologist. (Via) (Content at links may be disturbing to some.) [more inside]
One in every 8 babies born in the US is premature. A new study (pdf/via) published online Wednesday in Ultrasound in Obstetrics and Gynecology indicates that vaginal progesterone gel can help women who are pregnant for the first time and at risk of premature birth extend their pregnancies, reduce potential complications and boost the health of their newborns. [more inside]
"One day a little boy came up, he must have been about four and he saw me taking off my (prosthetic) legs and he started with the 'why' questions, you know, 'why haven't you got any legs', etc. And I said 'have you heard of The Little Mermaid?' and he said 'yes' and I said 'I'm a mermaid' and he got this look on his face and he said 'wow that's cool' and ran off to tell his dad.Weta Digital are the special effects team behind the costumes, weapons and creatures of the Lord of the Rings movies, Avatar and even a sonic screwdriver prop that could be making an appearance on the next season of Doctor Who. In 2009, they created a fully functional mermaid tail pro bono for Nadya Vessey, an Auckland woman who is a double leg amputee. Video News Report: 1, 2.
I'll have to turn up to that beach again sometime with my tail - just in case he's there."
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