I write a lot of notes to myself these days, but this one is different. Remember the body. A strange thought. How could I forget it? And yet I do.
I have had MS for a little over a year and this has been the surprising, sometimes embarrassing challenge in my particular case: where does the disease end and where do I begin? What is the illness and what is just my maddening response to it?Games writer Christian Donlan (previously) writes about neurology, language and life since his diagnosis with multiple sclerosis.
At the finish of every race, she staggers and crumples. Kayla Montgomery is a a high school track star in North Carolina. Kayla Montgomery has early-onset multiple sclerosis. The two are apparently related. Because M.S. blocks nerve signals from Montgomery’s legs to her brain, particularly as her body temperature increases, she can move at steady speeds that cause other runners pain she cannot sense, creating the peculiar circumstance in which the symptoms of a disease might confer an athletic advantage.
B-movie legend Albert Pyun is retiring from filmmaking due to a diagnosis of "full blown MS". [more inside]
'A childhood that began with a sort of cautious optimism quickly devolved into absolute horse shit.'
Have a seizure. The non-disabled can have a lot of trouble coming to grips with a friend's disability, especially if it's something that doesn't show up well from the outside. As the writer puts it, "... she knows I have MS, but she's never actually seen my disease, and there are miles between those two things." There are a whole host of bad ways for someone to react to seeing the disease. And then there are the good ones.
She's completed ten marathons, climbed 6.5 of the Seven Summits, and she's preparing to dogsled to the North Pole. Wendy Booker also has multiple sclerosis. Interview with Craig Ferguson.
Some scientists have used stem cells to regenerate myelin in mice, paving the way for new MS treatments. Other scientists have created mice from two fathers. Meanwhile, using stem cells to treat paralysis advances from mice to monkeys.
The Amazing Flo Fox. A look at the interesting life of New York street photographer Flo Fox.
A quiet revolution is taking place in the multiple sclerosis community. Long thought of as purely an autoimmune disease, possibly secondary to Epstein-Barr virus infection or even an STI, MS has never been pinned down to a single cause. Now things are changing, in a big and bloody way: MS appears to be related to abnormalities in veins. [more inside]
One recent celebrity death that most likely fell under the U.S. radar was that of Terry Black, who in the early 1960s was Canada's answer to Fabian. Growing up listening to CKLW, I remember Terry Black for "Goin' Down (The Road to L.A.)", recorded with his wife, Laurel Ward. Black had been diagnosed with multiple sclerosis just a year ago, and apparently died from complications of the disease. [more inside]
Richard Horne, better known as Harry Horse, died this weekend. This news is more prominent in the UK than in the US, but Harry Horse (MySpace) was not only a writer and illustrator of children's books, but he also designed video games and drew striking political cartoons. In the 80's he played with a band called Swamptrash (listened to but unavailable on LastFM), whose other members eventually went on to form Shooglenifty. Tragically, Richard's wife Mandy developed Multiple Sclerosis, and eventually became confined to a wheelchair and unable to speak. Rather than live without her, he chose to help her die and then take his own life, possibly reigniting the discussion in the UK about euthanasia.
Dr. Katz has multiple sclerosis. A great profile of comedian Jonathan Katz, who is now battling the horrible disease.
Multiple Sclerosis could be sexually transmitted! Not only that, your risk of developping the disease can double if you own a bird, but if you own a cat or a dog, your risk decreases...