Adam Pearson suffers from neurofibromatosis, a condition that causes tumors to grow on his face. They are sizable. You wouldn't fail to notice them, even from a distance. Nonetheless, he appears in a small but absolutely pivotal role in Under the Skin, opposite Scarlett Johansson, playing a sexy alien serial killer, in one of the most remarked-upon scenes in the film. "[Facial scars and other disfigurements are] always used very lazily" by filmmakers, he tells The Guardian. "In an ideal world actors with conditions would play the characters with these same conditions.... If they'd got Adam Sandler and blacked him up to play Nelson Mandela, there would have been an uproar ... but with scars and stuff, it seems like people are cool with that." [more inside]
Reggie Bibbs has neurofibromatosis, and he has made it his life's mission to educate people about the disfiguring disease. Besides going to lots of big public events, he's got a Facebook page, a Flickr site, a Myspace page, and a YouTube channel, and he founded a nonprofit to help raise awareness of NF.