Do you have a life-changing medical condition? Patientslikeme (mentioned previously in a 2008 post on mood conditions)
is a way for you share information online with other people who have the same condition. Some of the conditions with groups established already are epilepsy, depression, and Multiple Sclerosis.
Started by 3 MIT engineers who had personal experiences with ALS (Lou Gherig's disease), the site is funded by partnerships with healthcare providers
who have access to anonymised data about the member base. The stated goal in their Openness Policy
has a plain-English description of what happens to information that members share.
posted by harriet vane
on Mar 16, 2010 -
Changes to Orphan Works copyright legislation in the US began to crumble
in 2008 when the NPPA and a grassroots initiative finally gained momentum. Still, the ASMP has a FAQ
outlining their position on the 2008 Orphan Works bill stating that it is inevitable legislation and they should take advantage of a favourable congress to retain as positive a position for photographers as possible.
It seems that new laws are close to coming into effect in the UK government seemingly nationalising orphan works
and in a separate action (same article) banning non-consentual photography making street photography essentially impossible. [via]
posted by michswiss
on Feb 25, 2010 -
In 2006 some Italian teenagers filmed themselves assaulting a youth with Down Syndrome and uploaded the video to Google Video Italia. It was pulled from the site within hours, but that did not satisfy the Italian Down Syndrome support group named Vivi Down
, who filed a complaint that resulted in a two-year investigation. That lead to charges and indictment of four Google executives, who were never aware of the video until after it had been removed, for violating Italy’s privacy code.
Today the Italian court ruled
that three of the four - chief legal officer David Drummond, global privacy counsel Peter Fleischer and former CFO George Reyes - are guilty, and sentenced them to 6 months to a year of jail-time. The fourth, Arvind Desikan, former head of Google Video in London, was acquitted. [more inside]
posted by BeerFilter
on Feb 24, 2010 -
8 Million Reasons for Real Surveillance Oversight.
"Sprint Nextel provided law enforcement agencies with its customers' (GPS) location information over 8 million times between September 2008 and October 2009. This massive disclosure of sensitive customer information was made possible due to the roll-out by Sprint of a new, special web portal for law enforcement officers."
posted by chunking express
on Dec 3, 2009 -
Wikipedia is being sued for publishing the names of two convicted killers.
Wolfgang Werlé and Manfred Lauber killed well-known German actor Walter Sedlmayr
in 1990. They were convicted of the crime in 1993 and sentenced to prison, and recently released. Under German law, publishing the name of a criminal after he has served his sentence is considered an undue infringement of privacy, and is illegal. Accordingly, the German Wiki removed the names of the killers off the page discussing the murder --- but the English language version of wiki, based in the US and operating under the First Ammendment, has not. Now the killers' lawyer has sued the Wikimedia foundation to get them to remove the names. [more inside]
posted by Diablevert
on Nov 13, 2009 -
This morning, Google launched
a new feature called "Google Dashboard
" that lets users view (and in some cases control,) what data is being stored on a range of more than 20 Google services, including Gmail, Calendar, Docs, Web History, Orkut, YouTube, Picasa, Talk, Reader, Alerts and Latitude. [more inside]
posted by zarq
on Nov 5, 2009 -
What the Internet knows about you.
"This project was started by a small group of Web developers and security researchers in order to highlight the problem of Web browser history detection
-- a problem which can dramatically affect the Web and hurt many people, if not solved quickly. Our direct goal is to educate the mainstream public and show them the direct consequences of allowing this aspect of Web browser behavior, as well as provide some solutions which mitigate the problem. However, since there are no existing satisfactory solutions
, our other objective is to point the attention of browser developers to this issue and strongly encourage them to implement the necessary and long-overdue fixes." [Via]
posted by homunculus
on Sep 3, 2009 -
Everybody knows about the Google Van now, some love it
, some hate it
, but it has become an assumed condition now that, if you're near a street, Google Maps might have your picture (I'm at work!
). Living further off the path might seem like a solution to avoid detection, but Google has stepped off the roadway and into more scenic routes with the Google Tricycle
. Being unpowered and smaller allows Google to get their 360° photographs from vantage points other than the curb in front of your house. Google Street Views won't just include streets anymore: they plan to cover national parks, bicycle paths, college campuses
, theme parks, any any other public place which isn't exactly van-friendly.
posted by AzraelBrown
on Jul 15, 2009 -
Neurosecurity: security and privacy for neural devices.
"An increasing number of neural implantable devices will become available in the near future due to advances in neural engineering. This discipline holds the potential to improve many patients' lives dramatically by offering improved—and in some cases entirely new—forms of rehabilitation for conditions ranging from missing limbs to degenerative cognitive diseases. The use of standard engineering practices, medical trials, and neuroethical evaluations during the design process can create systems that are safe and that follow ethical guidelines; unfortunately, none of these disciplines currently ensure that neural devices are robust against adversarial entities trying to exploit these devices to alter, block, or eavesdrop on neural signals. The authors define 'neurosecurity'—a version of computer science security principles and methods applied to neural engineering—and discuss why neurosecurity should be a critical consideration in the design of future neural devices." [Via Mind Hacks]
posted by homunculus
on Jul 8, 2009 -
In an 8-1 ruling,
the Supreme Court ruled Thursday that school officials violated an Arizona teenager's rights by strip-searching her for prescription-strength ibuprofen, declaring that U.S. educators cannot force children to remove their clothing unless student safety is at risk. Clarence Thomas demurred
, suggesting that panties would become the new drug underground.
posted by dejah420
on Jun 25, 2009 -
"Please list any and all, current personal or business websites, web pages or memberships on any Internet-based chat rooms, social clubs or forums, to include, but not limited to: Facebook, Google, Yahoo, YouTube.com, MySpace, etc.," the City form states. There are then three lines where applicants can list the Web sites, their user names and log-in information and their passwords. The City of Bozeman takes their job application process too far?
posted by hippybear
on Jun 19, 2009 -
NSA E-Mail Surveillance Renews Concerns in Congress.
"Since April, when it was disclosed that the intercepts of some private communications of Americans went beyond legal limits in late 2008 and early 2009, several Congressional committees have been investigating. Those inquiries have led to concerns in Congress about the agency’s ability to collect and read domestic e-mail messages of Americans on a widespread basis, officials said. Supporting that conclusion is the account of a former N.S.A. analyst who, in a series of interviews, described being trained in 2005 for a program in which the agency routinely examined large volumes of Americans’ e-mail messages without court warrants. Two intelligence officials confirmed that the program was still in operation." [Via]
posted by homunculus
on Jun 17, 2009 -
The novlist Julie Myerson has written a book, The Lost Child, about her son's addiction to cannabis, the violent behaviour she says this caused and her tough love policy. Extract
. Her son is angry
that she's published it, and says his parents over-reacted: "I wasn't doing anything that most other teenagers do, but such was their naive terror of drugs they were acting like six-year-olds". It comes out through MumsNet
that Julie Myerson was the anonymous author of a Guardian column, "Living with Teenagers," which described her children's behaviour candidly without their knowledge. Extract
. Myerson first denied this
. The Guardian discusses whether it was right to publish the columns
. Myerson is interviewed
about whether she was right to publish The Lost Child. Her partner, and son's father, Jonathan Myerson supports her: This is an emergency
. Her son says she's addicted to writing
. [more inside]
posted by paduasoy
on Mar 15, 2009 -
In a move applauded
by some internet privacy advocates, Yahoo will retain personally identifiable search information for only 90 days
. This places it above competitors Google
in terms of protecting user privacy. Congressional representatives are taking notice
, but others criticize Yahoo's method of preserving user anonymity as not enough
, hearkening back to AOL's massive data leak
posted by Law Talkin' Guy
on Dec 24, 2008 -
"Ever since President Bush confirmed the existence of a National Security Administration wiretapping program in late 2005, he has insisted it is aimed only at terrorists’ calls and protects Americans’ civil liberties ("This is a limited program
designed to prevent attacks on the United States of America — and I repeat: limited.")....However, ABC News
reports [text with embedded video
] that the NSA frequently listened to and transcribed the private phone calls of Americans abroad....These conversations included those of American soldiers stationed in Iraq and American aid workers abroad, such as Doctors Without Borders."* [more inside]
posted by ericb
on Oct 9, 2008 -
Privacy is dead - get over it
] is a talk by private investigator Steve Rambam. It's a talk he has been giving for a number of years where he shows how privacy is being taken away, not by sinister plots but because people are giving it away. With people putting up everything and nothing on MySpace, Facebook, Twitter and so on, as well as a growing quantity of data held in private databases, he shows how easy it is to find out enormous amounts of data on just about anyone. [more inside]
posted by bjrn
on Sep 2, 2008 -
Google has been ordered
to turn over all of its electronic records of the videos watched by users on YouTube to Viacom. The 12 terabytes of data include records of every video watched by every user, including the user's login name (if any) and IP address. Google had complained that the disclosure would invade user's privacy, but this argument was blunted somewhat by Google's earlier statement
that IP Addresses are not, in and of themselves, personally identifying information. Google was also ordered to turn over certain other information, including its video classification database schema, but was not ordered to turn over information regarding videos marked as private, its source code, or its advertising database schema.
posted by The Bellman
on Jul 3, 2008 -
With Comcast, your TV watches you.
Comcast is developing cable boxes with cameras to watch the room. They will know who is there to provide shows in your profile, engage parental controls, and of course, deliver targeted advertising.
Comcast is watching you....
posted by caddis
on Mar 23, 2008 -