Do you have a life-changing medical condition?
Patientslikeme (mentioned previously in a 2008 post on mood conditions) is a way for you share information online with other people who have the same condition. Some of the conditions with groups established already are epilepsy, depression, and Multiple Sclerosis.
Started by 3 MIT engineers who had personal experiences with ALS (Lou Gherig's disease), the site is funded by
partnerships with healthcare providers who have access to anonymised data about the member base. The stated goal in their
Openness Policy is to speed up the pace of research and help fix the broken (US) health system. The
Privacy Policy has a plain-English description of what happens to information that members share.
posted by harriet vane
on Mar 16, 2010 -
15 comments