Do you have a life-changing medical condition? Patientslikeme (mentioned previously in a 2008 post on mood conditions)
is a way for you share information online with other people who have the same condition. Some of the conditions with groups established already are epilepsy, depression, and Multiple Sclerosis.
Started by 3 MIT engineers who had personal experiences with ALS (Lou Gherig's disease), the site is funded by partnerships with healthcare providers
who have access to anonymised data about the member base. The stated goal in their Openness Policy
has a plain-English description of what happens to information that members share.
posted by harriet vane
on Mar 16, 2010 -