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2 posts tagged with spinalmuscularatrophy. (View popular tags)
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Avery SMAvery!

Imagine you've been diagnosed with an incurable genetic disease and you are told you will not only lose your ability to walk and move your arms, but you will die between now and the next 18 months. What would you do? My name is Avery Lynn Canahuati, I'm almost 5 months old, and this has become my reality. [more inside]
posted by zizzle on May 1, 2012 - 133 comments

Building a life solution for your daughters

Normal for Us: The Millter Twins This is a pretty amazing documentary, made by Eric Cain for Oregon Public Broadcasting, about twins Michelle and Mariya Miller and their family. The girls were born with Spinal Muscular Atrophy and therefore have never been able to walk. The parents were determined to have their daughters live life and so developed unique motorized transports and a home that accomodates their needs. In a tiny town in Alaska. Talk about pulling the tears right out of their ducts!
posted by billsaysthis on Sep 16, 2004 - 12 comments

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