3 posts tagged with taysachs.
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Grief Magic

What do ruined people do? Weird shit. This seems to be the consensus of psychoanalysts as far back as Freud and Jung; the traumatized self creates, out of necessity, a system of self-care that is keen to avoid repeat trauma. This makes change difficult; it makes people who’ve had part of their psyches destroyed by unmanageable emotions push people and emotions away, create obstacles, generate unnecessary drama. [more inside]
posted by stoneweaver on Mar 8, 2016 - 13 comments

On Human Gene Editing, seizing control of human inheritance

Last April, motivated by rumors of a Chinese paper published the next month that physically demonstrated the technical feasibility of editing human germline DNA with CRISPR by successfully modifying human embryos, a coalition of well regarded scientists assembled to address this fundamentally new ability and they called for an international summit. It was to be billed as a new Asilomar Conference on Recombinant DNA for a new age in order to lead a new global conversation on questions of whether and how to control human inheritance, which could only be dreamed of 40 years ago. This is a fundamental departure from the non-inheritable gene engineering with CRISPR covered on the blue recently. Thus, from December 1-3, the International Summit on Human Gene Editing, held as a collaborative effort between U.S. National Academy of Sciences and National Academy of Medicine, the Chinese Academy of Sciences, and The Royal Society, met to discuss the future of this technology and has come out with a clear consensus statement. [more inside]
posted by Blasdelb on Dec 5, 2015 - 67 comments

Blogging About Parenting

Blogging about parenting. Little Seal is about Emily Rapp's son Ronan, who is 2 1/2 and has Tay-Sachs disease. Count on Rapp for a jolt of humanity and perspective amid the mundane. Her Bad Mother is Catherine Conners, a working mom devoted to her husband and children, who chronicles the ups and downs of parenting, balancing it all with humor and poignancy. She is not afraid to speak out against mothers who believe that their way is the best way to raise kids. These blogs are among the 25 Best Blogs 2012 per Time magazine.
posted by netbros on Oct 23, 2012 - 4 comments

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