Please Support Genetic Freedom
March 13, 2011 7:28 AM Subscribe
posted by Jason Malloy (98 comments total)
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Should you be allowed unrestricted knowledge of your own genetic makeup? Or should your doctor be the one to decide how much you can know about your own genes? Currently direct-to-consumer (DTC) genetic testing
companies (such as 23andMe) allow consumers to discover which genes they have inherited. But some influential people are arguing that the general public is harmed by the ability to freely access this type of information. The American Medical Association is urging the FDA
to make it so that genomic information is only available to a person through a personal physician or medical counselor. As a counterpoint the geneticists at the Genomes Unzipped website provide a six point statement on why People Have A Right To Access Their Own Genetic Information
The Genomics Law Report
website summarizes the most recent FDA conference on DTC genetic testing, and notes that you should make your voice heard if this issue is important to you.
is additional information on how to share your opinions on the issue with the FDA or congress.