My beloved monster and me, we go everywhere together.
July 11, 2007 12:18 PM Subscribe
Rob Rummel-Hudson is a likeable smartass, who's been blogging forever. He and Julie have a cute daughter, Schuyler. One day, she was diagnosed with a rare, serious neurological condition: Bilateral Perisylvian Polymicrogyria or, as they have come to call it, Schuyler's Monster. Rob continued his candid, passionate diary - at one point stirring the growing group of loyals to raise more than $10,000 dollars (in less than a month!), endowing Schuyler with a speech device (a.k.a. Big Box of Words). Slated for publication in 2008, as blogs-become-books go, this father/daughter story deserves a closer look.
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