My beloved monster and me, we go everywhere together.
July 11, 2007 12:18 PM Subscribe
Rob Rummel-Hudson is a likeable smartass, who's been blogging
forever. He and Julie have a
cute daughter,
Schuyler. One day, she was
diagnosed with a rare, serious neurological condition:
Bilateral Perisylvian Polymicrogyria or, as they have come to call it,
Schuyler's Monster. Rob continued his candid, passionate diary - at one point stirring the growing
group of
loyals to raise more than $10,000 dollars (in less than a
month!), endowing Schuyler with a
speech device (a.k.a.
Big Box of Words).
Slated for
publication in 2008, as
blogs-become-books go, this
father/
daughter story deserves a
closer look.
posted by progosk (17 comments total)
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posted by Ambrosia Voyeur at 12:59 PM on July 11, 2007