In a 2006 interview, Lurie said that he had been in ill health since the mid- to late 1990s, with a number of neurological symptoms, "sort of like malaria", but that he is "90% certain that it is advanced Lyme disease. [4] Lurie said that his illness has kept him from acting or performing music, and that he spends most of his time in his apartment, painting.And a search for that interview turns up this:
PSF: We don't have to discuss it at length, but it's good for people to know I think. You've described as some sort of Advanced Lyme Disease, right? And it's pretty much prevented you from going out & playing music?I'm now listening to the WNYC interview, and, transcribed, here's what one hears:
JL: Depends on who you believe but yes.
PSF: I thought you had said as much in an interview on WNYC earlier this year?
JL: Yeah, I don't have a problem talking about it. It is just that the answer is very long and I am frustrated beyond what one could imagine with trying to get a diagnosis and the medical world in general. What I do is say that I have Advanced Lyme Disease because it is simpler than explaining. There are, at least, eight doctors who confirm that diagnosis. They are positive beyond a shadow of a doubt. The problem is that there are another eight who say that it absolutely is not advanced Lyme, that it is a rare form of epilepsy, a rare form of M.S., Basilar migraines, Mercury poisoning, an autoimmune disorder stemming from chronic Hep B (even though my counts are perfectly normal).
Leonard Lopate: "Is your emphasis on painting right now connected in some ways to your health problems?"So I think this is really far from a watertight diagnosis of Lyme disease that is causing neurological problems.
John Lurie: "Yeah. Um, almost, I mean like I can't play music now. I mean I have trouble getting out of the house. I mean, someone had to bring me here. So...
LL: That's because of Lyme Disease?
JL: I'm ...90% sure I have advanced Lyme disease. If it's not an advanced Lyme Disease, they don't know what it is. There's weird migrating neurological problems that can, you know, and it kind of has a malaria, it's kind of like malaria, where it'll just come on. So I never know quite when it's, like I didn't know last night at 4 in t he morning if I would be able to make it here, so...
LL: Causeyou look better than you did when you were her last year.
JL: I look better than before I got sick! Because, you know, no, no coffee, no alcohol, no um...no preservatives, I'm super careful. I look better than I did 5 years ago. So no, it's all neurological, you know, it's vision, hearing, weird brain fog stuff, uh, miscommunication, my nervous system sending weird impulses to my heart which causes what I thought in the beginning was heart attacks and then panic on top of that, so learning how to psychologically deal with that has been enormous
LL: Did you get that on location for your fishing show?
JL NO. But the thing is, they only discovered Lyme disease,what, 20 years ago? I had Lyme in 1994. I had some of these symptoms before I had that. So I don't know that. you know, I've been to Africa a lot of times, I been to Thailand a bunch of times, who knows if there's som...If they only discovered Lyme disease which is in the Northeast of the United States, I could have got something in Africa in the jungle...who knows what that is.
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posted by Miko at 10:09 AM on August 18, 2010 [1 favorite]