Epilepsy and SUDEP
September 9, 2019 1:07 PM Subscribe
Sudden unexpected death in epilepsy (SUDEP) is comparatively little known, even among people with epilepsy or families. More than 1 out of 1,000 people (and 1 out of 4,500 children) with epilepsy die each year from SUDEP (CDC). It's hard to know for sure due to current stigma and misreporting. In adults, if seizures are uncontrolled that risk can rise to 1 out of 150. In July, Cameron Boyce (Wikipedia), Disney star of the Descendants movie series and other movies and TV shows, died from what was initially described as a "seizure" but was later confirmed to be SUDEP. J. R. Storment, co-founder of Cloudability, recently lost his 8-year old son to SUDEP. Medical professionals actively debate about how much to share with patients and parents about SUDEP. Although the trend is toward more disclosure. There is on-going active research and SUDEP and SIDS may be related.